FAMILY SUPPORT
A DIPG diagnosis can be overwhelming. Our foundation helps families navigate medical decisions, connect with experts, and access essential resources.
We’ve lived it. Our founders lost their son Ronil to DIPG in 2018, and we know how much a family has to learn in the first few weeks. Reach out and we’ll help you find your way.
Ways to reach us
What happens next
Free nurse navigator program with 1-on-1 support from nurses experienced in pediatric oncology. They help families understand the diagnosis, explore treatment options, and connect with resources throughout the DIPG/DMG journey. Available in the United States.
A collaborative effort to centralize clinical data and tumor samples from DIPG and DMG patients. The registry provides access to consultations from international experts and information about current treatment approaches, clinical trials, and research projects.
Search the U.S. National Library of Medicine database for actively recruiting clinical trials that your child may be eligible for.
A pediatric brain tumor research charity built by families to support cancer families, including DIPG/DMG families, in their fight.
Provides financial assistance for medical expenses including travel, accommodation, and treatments for families with a child diagnosed with DMG/DIPG.
Grants life-changing wishes for children ages 2-18 with critical illnesses.
One-on-one peer support that connects newly-diagnosed and bereaved families with a community of 550+ DIPG/DMG families.
DIPG-focused family resources, awareness, and support.
Free educational resources, care kits, and support for childhood cancer families.
Nationwide financial assistance for families of children fighting DIPG.
Grants to help families cover travel costs for treatment.
Assistance with medical bills for families facing DIPG/DMG.
Learn what a DIPG diagnosis means and what families may expect moving forward.
Find experienced pediatric neuro-oncology doctors, hospitals, and treatment teams.
Understand radiation therapy, clinical trials, supportive care, and emerging research.
Discover trusted programs, financial assistance, counseling, and practical resources for your family's journey.
Continue receiving guidance, community support, and updates as you move forward together.
Tell us a little about your family and what you need. We’ll reply within 2 business days.
Your support helps fund research, support families, and raise awareness for children battling DIPG
Join Us in Helping
